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Marcia Wirt, MD, and parent, Janice Cooney, discuss why a Comprehensive Care Plan and Summary is so important for CYSHCN, and particularly vital for emergency care.

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Site last updated:
October 15, 2009

Wisconsin Resources

Pediatric Pulmonary Center, University of Wisconsin Madison

  • Electronic Medical Home Care Plan (link)

National Resources

Center for Medical Home Improvement

  • Care Coordination Workbook (link)
  • Comprehensive Care Planning (link)

Practice-Based Care Coordination: A Medical Home Essential, McAllister, J., Presler, E., Cooley, W.C. Pediatrics. 2007.

ACEP/AAP Emergency Information Forms

National Center of Medical Home Initiatives for Children with Special Needs

Healthy Ready to Work Portable Medical Summary

The Physician's Guide to Caring for Children with Disabilities and Chronic Conditions

Enhancing Collaboration between Primary and Sub-specialist Care (PDF)

Agency for Healthcare Research and Quality (AHRQ)

A Critical Analysis of Care Coordination Strategies for CSHCN, June 2007

The Role of the Pediatrician in Rural EMSC, Pediatrics. 2005 (link)

Care Coordination in the Medical Home: Integrating Health and Related Systems of Care for Children with Special Health Care Needs, Pediatrics.2005 (link)

A comprehensive medical summary/care plan is essential for children/youth with special health care needs who may have complex and lengthy medical records. A careplan provides:

  • Parents, patients, medical, educational and other care teams one consistent information source;
  • Facilitating emergency care; and
  • Providing an action plan that the care team can use to prioritize goals, assign tasks, implement and assess care.

Videos
Parents and physicians discuss why the care plan is the ‘cornerstone’ of a good Medical Home. 

Medical Home Resources
Care plans from Wisconsin and nationally developed templates can be found in this resource section.  The National Center for Medical Home Initiatives has created a Build Your Own Care Notebook section on their Web site. There is a link to a set of condition-specific care plans and a guidebook focusing on building effective communication between the primary care doctor, the specialist and the family. More care plans supporting transition to adulthood can be found in the following section.